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for the update, see below the original article
Here it is, folks.
What do you do when your surgeons tell you all traditional medicine options have been exhausted, which they have, and your choices are down to having an ostomy or get rid of inflammation? Oh yeah, those same surgeons urging me to seek alternative treatments, refuse to write any sort of alternative prescriptions for you, so you began to e passed around like a hot potato. Each doctor, telling you to see another doctor, who says, “No, you need a specialist in XYZ.” Until you’ve gone full circle, and you are back at square one.
I have had nearly 30 surgeries, most non-invasive incision and drainage/placement of seton drain for perirectal abscesses, fistulotomies, a couple very invasive re-sectioning of the small bowel, since 2004.
I have been on every pain killer in the book. Starting with IV Demerol at age 15 for the six weeks I was in the hospital when first diagnosed. Next, on to Oxycontin 20’s and Vicodin up to four a day for “breakthrough pain.” Fentanyl, Actiq lozenges, to fentanyl Duragesic patches, for the same chronic/breakthrough pain, to methadone (anywhere from 40 to 120mg), morphine sulfate, and now after diagnosed with chronic pain syndrome, buprenorphine/naloxone, interrupted only by the occasional Dilaudid 4 to 8mg for incision and drainage post-op pain.
If you’re thinking it’s a miracle I’ve survived all of those painkillers through all of those years, your damn right. Nothing short of a miracle. Which is why I took up this blog so that folks may see this who might be struggling with the same Crohn’s/Colitis issues and/or other chronic pain issues and see that there is someone out there who feels your distress. Having dealt with addiction, multiple stints in jail and come out on the other end, I know that there must be a point to me still being here with you all.
So, in need of some sort of a miracle and on disability, I find myself on a fixed income with little to no chance of making any under the table cash money despite efforts at teaching guitar/piano lessons and other fruitless ventures. I just want to be given a fair chance by my physicians.
That’s when the following came back into my mind. It worked for a couple of years in which I was symptom-free, inflammation free, surgery free. The treatment was testosterone cypionate. I went from weighing 150 lbs to 185, mostly muscle.
The problem was that even the best insurance doesn’t cover any of that stuff. Despite the overwhelming evidence that it is safer, more effective, than other more invasive, Entyvio, Humira, Remicade, more term treatments, although they do unfortunately have their place as emergency medicine, methylprednisone/prednisone that destroys your mind and body, kidneys, and turns most who take it into complete maniacs, with even more side effects than I care to mention.
This article doesn’t even touch on cannabis therapy, which is extremely useful in many individuals with symptoms mentioned here in this article such as chronic pain, fatigue, anxiety, & depression that is accompanied by so many with Crohn’s/Colitis, as well as inflammation. When applied directly to the source of the problem, for instance, perianal abscesses/fistulae, in suppository form, has very promising potential. Unfortunately, many doctors say that the science isn’t there. But in truth, doctors who practice in states like Colorado, using Cannabis it’s other half, if you will, and non psychocactive compound of the cannabis plant, “CBD”, to treat and heal patient after patient, year after year, some of which have even written books on the subject, would readily tell skeptics differently, and have the data to prove it.
Below are just a few of the articles I found doing a few quick google searches.
Please, as always, I would love to hear feedback from readers. It almost seems vital at this point that we have people speak up about this before another unnecessary ostomy is performed on a patient who could have had this medication at their disposal, and or cannabis/CBD therapy.
“Human Growth Hormone (HGH) has been on the radar for years claiming to help many issues from wrinkles in the skin to improved athletic performance. Even though this is a natural protein produced by our body, adding HGH Booster can have improved benefits of all kinds. As we age, the HGH levels in our body decline leaving us to fight the aging process all alone.While HGH is best known for its anti-aging properties, it can have profound effects on other more serious problems that many people deal with every day.One of the issues that were studied is Crohn’s disease. Crohn’s is defined as an inflammatory bowel disease. This profoundly painful condition causes inflammation of the digestive tract which usually leads to stomach pain, severe diarrhea, fatigue, and weight loss caused by malnutrition. In the United States alone Crohn’s affects more than 1.6 million people, and unfortunately, this chronic condition is lifelong and cannot be cured. Many different medications are used to treat ulcers, pain and digestive problems caused by this disease. However, a study performed on a group of adults who incorporated HGH as a tool to reduce the side effects of Crohn’s had promising results.A small number of adults with moderate to severe Crohn’s was chosen to supplement their daily routine with Human Growth Hormone Supplements. All of the patients increased protein consumption to 2g per pound of body weight as well. After 4 months of HGH therapy, the patients were retested to determine disease activity. Scores can range from 0 to 600 with the higher score showing more Crohn’s activity. In the beginning, the HGH group had a slightly higher activity score compared to the placebo group. 287 for HGH and 213 for the placebo. After the 4 months of HGH treatment, the placebo group had a decrease in Crohn’s activity by 19 points. Any reduction is good, but the results for the HGH group was terrific. After 4 months the HGH group had a decrease of 143 points with little to no lasting side effects. Although this was only one study, the results were auspicious. Anyone who suffers from this awful disease will tell you any decrease in pain and discomfort is welcomed.”
“A preliminary study of growth hormone therapy for Crohn’s disease.Slonim AE1, Bulone L, Damore MB, Goldberg T, Wingertzahn MA, McKinley MJ.Author informationAbstractBACKGROUND:Crohn’s disease is a chronic inflammatory disorder of the bowel. In a preliminary study, we evaluated whether the administration of growth hormone (somatropin) as well as a high-protein diet would ameliorate the symptoms of the disease.METHODS:We randomly assigned 37 adults with moderate-to-severe active Crohn’s disease to four months of self-administered injections of growth hormone (loading dose, 5 mg per day subcutaneously for one week, followed by a maintenance dose of 1.5 mg per day) or placebo. We instructed all patients to increase their protein intake to at least 2 g per kilogram of body weight per day. Patients continued to be treated by their usual physicians and to receive other medications for Crohn’s disease. The primary endpoint was the change in scores on the Crohn’s Disease Activity Index from baseline to month 4. Scores can range from 0 to 600, with higher scores indicating more disease activity.RESULTS:At baseline, the mean (+/-SD) score on the Crohn’s Disease Activity Index was somewhat higher among the 19 patients in the growth hormone group than among the 18 patients in the placebo group (287+/-134 vs. 213+/-120, P=0.09). Three patients in the placebo group withdrew before their first follow-up visit and were not included in the data analysis. At four months, the Crohn’s Disease Activity Index score had decreased by a mean of 143+/-144 points in the growth hormone group, as compared with a decrease of 19+/-63 points in the placebo group (P=0.004). Side effects in the growth hormone group included edema (in 10 patients) and headache (in 5) and usually resolved within the first month of treatment.CONCLUSIONS:Our preliminary study suggests that growth hormone may be a beneficial treatment for patients with Crohn’s disease.Comment inNew therapeutic approaches to Crohn’s disease. [N Engl J Med. 2000]”
“Testosterone therapy in men with Crohn’s disease improves the clinical course of the disease: data from long-term observational registry study. … Low serum testosterone is associated with an increase in inflammatory factors, while testosterone administration reduces them.”
As I was going through some documents from my medical chart, I noticed a bone density scan my gastroenterologist had ordered in 2014.
The results caught me off guard, they showed that I had moderate osteopenia, which is not as bad as osteoporosis, which is irreversible. Additionally, the first method of treatment she listed for these conditions in men was hormone replacement therapy (HRT), which for men, of all options for HRT usually revolve around boosting testosterone levels by injections of the substance I was on when I had a brief remission. Testosterone cypionate intermuscular injections. One would imagine that Growth Hormone would work to help fight the effects of bone density loss.
I cannot truly say that I’m surprised. It makes perfect sense to me.
Now, I just need to either find a way to get ONE of my doctors who has either urged me to pursue all of the usual medical treatments, as we, in his words, “have exhausted all traditional medical therapies”.
How hard should it be, am I going to need to line up appointments with each physician who has seen my disease first hand, beg & plead with them for a recommendation, a prescription, anything until one decides to help me out?
If there’s even a chance that HRT therapy, testosterone, HCG and or HGH would keep my health up and out of the OR, why not give it a try?