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Dude, Not Cool.

Doctors and nurses ran frantically into and out of the small room I found myself in. I had never seen such organized chaos from my place in the hospital bed. Little did I know it then, but I had just traveled the longest, most expensive 50 miles, by ambulance to the nearest hospital. In weeks I had not felt the emotion you and me, we all have at some point in time likely taken for granted, known as joy. We’ll come back to that sensation and others, both authentically human and artificially or chemically induced, in greater detail later.
In weeks I had not been hungry, had not eaten anything that felt like it wasn’t fighting to out of me. I was miserable. I hadn’t held a baseball or wore a pair of cleats in as much time, though that time was starting to feel like much, much longer.
The doctor came into the room, finally. He decidedly sighed, looking over what I could only assume had to be my chart. After a quick but thorough examination, he stepped back and folded his arms. He then knowingly looked over to me, into my eyes, then as if without a shadow of a doubt said to my worried parents, “Crohn’s disease.”

As he continued talking, my mind raced off far away; immediately I knew one thing- I had never heard of anything that sounded so unpleasant, so uncool. After a few seconds, I came back into my body. “…but we’ll get him started on some steroids to control the inflammation and get you some medicine for the pain.”
He grinned, “You’re going to be feeling better soon”, he said, “but we want to be sure that you don’t have anything to eat or drink for maybe a day or two.” He went on further, but my ears told my brain it had heard enough. Provided the fact that I had tubes up my nose that had the necessary task of pumping bile from my diseased gut so that I could stop incessantly vomiting, I thought how he could joke at a time like this? Who is this guy, what is this, his job? Telling strangers who had nearly choked on their stomach as it tried to turn itself inside out, that he would fix them, while he starved them?”

Crohn’s Anonymous: Introduction

 


≡          I’d LIKE TO WELCOME YOU TO:

                  ‘CROHN’S ANONYMOUS’ 
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This is ‘Crohn’s Anonymous’. Better or for worse. We’re Crohn’s. Crohn’s is not us.


Hi, I’m CrohnsAnonymous, and I’m a Crohn’s-a-holic. Whatever, right?

Like many of you, I have quite a story. I’ve always thought what could I do to help people and get paid doing it? So far, I’ve been a guitar/piano teacher and a Crohn’s disease advocate. So far, I haven’t got paid, at all, but that’s not why people set out doing things like this. If I could save one kid from getting discouraged and going down the ridiculous path I went down, and this blog, or something on this site kept that person from the pain and wasting of time, that makes not getting paid all worth it. 

I do swriting so I decided to learn blogging so that I could CONNECT with people similar to me, that is people with IBS (irritable bowel syndrome), IBD (inflammatory bowel disease)  UC (ulcerative colitis) and other inflammatory disorders.

– Post Script: That is not a word, “Crohn’s-a-holic”. Just in case that wasn’t obvious by my sometimes weird idea of dry humor. It’s true, though, the saying from biblic times, “Laughter doeth good like a medicine”. Maybe n some of the medicines I’ve been on and off more than a few times over my nearly 15 years of having the disease, (joking) but I digress. I’ll talk a bit more about that later.   

But really, welcome to the site, look around, remember it’s still a work in progress, if you see anything you like, follow, or simply click like or share on social media. Oh, yea, leave comments if you feel like it…I read all the comments and usually reply. That’s one of the reasons I’m awake at 5:15am on a…well, you get the point.

— I’d like to welcome y0u all to “crohnsanonymous.com”. 

I suppose I should get into a little about my story and ‘time’ with Crohn’s disease..and I will. For now, I’m going to go work on a few other parts of the site… and leave you, for now, with this, as it’s s all I can think of to say at this juncture. I’m new at this, bare with me…but I’m confident that this is exactly what I’m supposed to be doing, at this exact moment; for what it’s worth. I believe in the power of communication, connections, and bringing together some ideas, solutions, problems, and idk what Crohn’s Anonymous is yet. Dunno. Not a an clue. But with your help, support, in every way you feel like helping by sharing,  being vocal about your story, stories of people you love, etc., I think this might one day be something to look back on and be proud you were part of.

 

— I’d like to welcome y0u all to “crohnsanonymous.com”. 


Follow or Subscribe to receive a periodical. Remember when doing either that just receiving the confirmation email (which is sometimes found in the spam folder in your inbox) doesn’t mean you’re quite done. I know…but once you reply to that “confirmation email” you’re in. Or just swing by the site every now and then. As long as you’re happy, I’m happy. I’m just sayin’..hopefully you’ll enjoy what you read and it will add meaning to what people with a bowel disorder or auto-immune disease, for those with gluten sensitivities, inflammatory disease, stay tuned.

‘THE TRUTH ABOUT CROHNS AND MARIJUANA’ by MMJDOCTORONLINE.COM

Cannabis & Crohn’s Disease PT. I – The Research Doesn’t Lie

When research is done on any given drug, it is done so by scientists, using- yes! Using science. Science does not have an agenda. Science is rigorously testing over and over again. Because science is not about guessing; science is only interested in facts. Science is knowing, and the scientists who risk their reputations to take on research, have no reason to fabricate their findings, as it would undoubtedly lead to devastating professional ruin.

Take a look for yourself. Click on the links below to see the truth about Crohn’s disease and marijuana as told by MMJ Doctor Online.

MmjDoctorOnline.COM The Truth About Crohn’s and Marijuana (cannabis)

MmjDoctorOnline.COM – Blog on Cannabis and can help with Crohn’s Disease and other IBD’s