I remember when my father brought home our families first computer in the mid 1990's. I was maybe 8 or 9 years-old. The computer was slow, over-sized, ugly, by today's standards, but I was convinced it was God's gift to mankind. It was as if there was some kind of switch that was set off … Continue reading Memories & The Stuff That Keeps Us Up at Night
Just some pre-op thoughts while I wait for an operating room...and my surgeon to sober up. I'm kidding, they probably have a couple OR's open. You know, Texas has some of the most beautiful nurses...that's not just the Dilaudid talking. I believe, in fact, ACC, UT Texas & Texas State have nursing programs with … Continue reading Pre-Op Thoughts: Not All Bad…
The hospital doctors and nurses ran frantically into and out of the small room I found myself in. I had never seen such organized chaos from my place in the hospital bed. Little did I know it then, but I had just traveled the longest, most expensive 50 miles, by ambulance to the nearest hospital. … Continue reading My Story: PT. I Dude, Not Cool.
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Keeping a journal of your diet, changes in your lifestyle, i.e. exercise; vs. your symptoms i.e. pain, changes in bowel movements, or energy level, can go a very long way in helping manage your symptoms, giving you better overall health and quality of life. These journal entries and notes can be as simple or as … Continue reading Keeping Journals Related to Your Disease
I just feel so sick of waking up, feeling just good (not bad) enough to get through another day. I feel either too exhausted or too anxious to answer my doctor's medical assistant's phone call's so she can help get me started on a medication that I don't want to be on in the first … Continue reading Tired of Feeling Sick & Tired
With our healthcare system under such tremendous strain, it's more difficult now than ever...
Courtesy of CrohnsAnonymous.com According to CrohnsDisease.com, about 80% of people with Crohn's disease will have a perianal abscess at least once. However, like ostomy's, who wants to talk about that, right? It might be the best-kept secret in the Crohn's disease community. But if it's part of your disease, you have to find a way … Continue reading What No One with CD/UC Wants to Talk About
Chew, Swallow, Repeat... Doesn't sound hard, does it? I'd just like to feel hungry again or swallow without discomfort, feeling as I once had. The truth is I haven't felt truly hungry since the last time I smoked weed or when I was on years ago before stopped going to pain management doctors for opioid … Continue reading This is Me Bitching: Chew, Swallow, Repeat…
"What do you do when your surgeons tell you all traditional medicine options have been exhausted, and your choices or ostomy or get rid of inflammation? Oh yeah, those same surgeons, refuse to write any sort of alternative prescriptions for you, so you began to e passed around like a hot potato. Each doctor telling you to see another doctor, who tells you, "No, you need a specialist in xyz." Until you've gone full circle, and you are back at square one."